Quick update

I know its May and still no recent photos. Computer issues hamper this badly but I have worked it out. So... While waiting for those to all upload, I thought I would write a quick update. Since the Central line came out in February - Harrison has had his second birthday. He has had a visited by Vision Australia to assess and start working with him for his growing blindness. And he has had two of the first 3 required immunisations. I am hopeful that he is well enough to have number 3 tomorrow ( Which will be the 6 month old immunisation).

Harrison is going along extremely well. Although I have not got a clue how any of his blood counts are going, and will find his out next month - or 4 weeks after the immunisation is done , at which point the hospital will test everything fully for the first time since January. The neurologist will review him then too , as there has been a change in his epilepsy med regime.

Also on the 11th June Harrison will have another MRI. Done under a general anaesthetic, this will check things like brain size, any potential problems caused by the epilepsy, and by the ADA SCID. Fluid amount around the brain, and the little bony skull growth that was growing weirdly at the last scan. Its mostly just to check on things and be certain all is 100% OK. Hopefully this will be positive, and also to be sure the Dr's will do a lumbar punch while Harrison is under to check on (and hopefully not grow) any bacteria or infection in the spinal fluid. All path of the course, but poor tike... Another GA. Grrr. Still its for a good reason and its about 12 months since the last scan so this is really good going.

That is it.

So.. watch this space, pictures a plenty a coming. He is quite the little man. He even speaks in sentences, and sings Twinkle Twinkle Little Star and Happy Birthday. Impressive for a kid who had such a rough start in life ! Just goes to show how super smart he is :)

Take care to all who still read, hope all is well.