HAPPEE BIRTHDAE HARRY!!!!

Well he's not Harry Potter - but he has just had a birthday - His giant big first birthday. 6th March 2008. What a massive year it has been and it took a lot of strength I really don't have at the moment to go back over the following pictures.














I still cry - probably more now than when the bad stuff was actually happening , and these just make it even harder.. I don't actually know how we survived the last 12 months - probably sheer determination more than good management and a massive backing from wonderful freidns and family. Your support and help got us through - so Harrison's birthday is not just a celebration of achieving one - it is a celebration of survival and for those wonderful people and family members out there who have been so kind, encouraging and supportive and we owe you a huge big thanks also.

I am putting together video of this as a celebration but until then .. A review.

From this ....


to this .....





























Not only that but our friend Ella in Singapore turned one two days after Harrison. She too is immune deficient but not ADA deficient and was lucky enough to come home from hospital in time for her birthday - Yay !!!! Good going Ella!!

Meeting New Friends...And then there were 2!

We were lucky enough during the start of the new year to meet - over the phone at least another little ADA-SCID boy's mum. They live in South Australia and this little boy has not had a bone marrow transplant but is on the enzyme injections and is doing fantastically well on these - And so there were two!! ( In Australia at least ) :)