Update - long long time no post

Well It has been a long time between posts - primarily as I had forgotten the login name!! Oh my :) Harrison is now 6 and a half and a right cheeky monster. He has grown to be a funny crazy little man and has started his first year of school this year. Due to his complications along the way Harrison has a few ongoing issues such as his immune function is still sub par - his bone marrow transplants are now as complete as they will ever get , but his cell engraftment of all three kinds of white blood cells is incomplete . T cell are great at 99% B cells ( them that make the antibodies and help produce immunities) are at around 30% and his NK cells dont exist.. So he is still susceptible to a great range of things - and despite many attempts to vaccinate the old man for chickenpox, measles mumps and rubella he has not produced antibodies. Recently as a result he came into contact with chickenpox and we had to get him an antibody transfusion to ensure that he stayed pox free!!! Luckily that worked fine .. scary stuff even still:) Harrison is quite developmentally delayed. He has a moderate intellectual impairment, an autistic spectrum disorder diagnosis, epilepsy and the eyesight is degenerating now very very rapidly. He has now only 5 degrees ( of vision left in his right eye only. Effectively its like looking through a drinking straw. His left eye is blind. He now hits the legally blind status and soon enough that right eye will follow along with the left. Ad so because of all of this he attends a special needs school. They are fabulous and have really made him very indepedant - he uses his long cane daily now and most days impresses people with how well he runs and rides a bike with his lack of vision!! We are about to embark on a series of see Australia adventures.. Adventure 1 - Uluru(Ayers Rock) The Olgas and Kings Canyon and then to Victoria to see the 12 apostles. Time for him to see what he can while he can- we are crafting books that have pictures in them and some touchy feely bits that will help him remember the trip - and hopefully we can make a few of these give them to guide Dogs and Vision Australia so other peope with a visual impairment can "see" australia too.. We are about to go to the hospital for our last ever bone marrow transplant checkup in a month. I am so excited but so almost afraid for the next step. It seems like its been such a long tired road to get here. For now though Harrison and his siblings are amazingly happy and have just moved on with life like nothing ever happened - and for that we can only be very thankful.. We have been truly blessed by amazing family, friends and the huge amount of support the kids have received through all of this - their world turned upside down for a long time and its a happy place to be now looking back:) Updates will follow for the last lot of results and how he goes now with his varying diagnosis and vision.