Wednesday, January 6, 2016

Update and transplant time has arrived - chemo commences!

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Update and transplant time has arrived... Since August we got delayed for Harrison's admission 3 times. But he now has a central line b...
Monday, August 31, 2015

Last Intragam for a while at Gosford Hospital

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Well last Friday was our final intragam at Gosford Hospital. That place is like home for us. Harrison never gets upset to go for his infus...
Tuesday, August 18, 2015

The start of something great....

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For a long time I have wanted to be in contact with families in Australia who have kids or are living with immune deficiency themselves. T...
Thursday, August 6, 2015

Bone Marrow Transplant No 3.

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Well Since last post we have had a crazy couple of months. The port insertion went in and has been a true blessing for delivery of intragam...
Friday, March 6, 2015

Updates on eyesight and immune function

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Well since August, we had a few bloods taken and Harrison's immune function continues to dwindle. Doctors had him on IVIG temporarily to...
Monday, February 23, 2015

Update - Eyes,Immune Function, Holiday & 2015 look ahead

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Life as always seems to fly by so fast. Already it is a month since we did our life changing USA Disneyland holiday. Two weeks ago Harriso...
Friday, August 15, 2014

Eyesight update

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We have had news recently that the growth in Harrison's eye - known as vasoproliferative tumour- may be a cancer. Dr's took some tim...
Wednesday, June 11, 2014

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A quick shout out to Katlyn! Katlyn is about to undergo a bone marrow transplant. She has made it this far and we know how hard that strugg...
Wednesday, May 28, 2014

The vision is dying and quickly! Sometimes it feels like its one step forward and 7 steps backwards.

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What a roller coaster the last 3 months has been. Harrison has had his usual round of blood tests last year to work out if his immune functi...
Sunday, May 4, 2014

Our Uluru Adventure from 2013

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Due to Harrisons vision going we took a trip to Uluru. One car, One camper Trailer, 4 kids and 2 adults. We drove an amazing 7,500 klm in 3 ...