Join us in celebrating Harrison's life while he battles Bubble boy disease - aka : ADA-SCID (Adenosine Deaminase Deficiency causing Severe Combined Immune Deficiency) and RP - Retinitis Pigmentosa - degeneration of the eye leading to blindness. Harrison is one of maybe only 2 ADA deficient child registered for PID (Primary Immune Deficiency) in Australia.
Monday, March 31, 2008
Meeting New Friends...And then there were 2!
We were lucky enough during the start of the new year to meet - over the phone at least another little ADA-SCID boy's mum. They live in South Australia and this little boy has not had a bone marrow transplant but is on the enzyme injections and is doing fantastically well on these - And so there were two!! ( In Australia at least ) :)
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