Pictures, updates and life in general

Harrison above in the swing seat on Christmas morning. He just loves sitting and swinging.

Harrison in hospital at Jan with Line infection around the central line site.


















The photo of Harrison with "santa" A blow up santa at the front of our house over Christmas - he kept asking to "See Santa" in his little baby speak - as very cute !

I have attached some pictures and video of the boy at Christmas and hope you all enjoy watching my amazing little man come of age. There was a short hospital stay in Jan for H with a line infection around the central line site - a skin infection of sorts so there are pictures of him then too.

In less then 6 weeks Harrison will be two - a milestone I thought we would not achieve some weeks, and he has proven many people - including myself to be wrong. He is nothing short of fantastic. He is down to 3 monthly visits at Children's hospital and there is talk of starting immunisations - then testing his immune function after the first course to see how his body reacts. I have no idea how the bone marrow stuff all is going, but tis must be ok f the doctors are starting to discuss all this.

I am writing this from hospital with Ella in this time - has a lovely infection in her jaw - and many swollen glands etc, which needed to be surgically drained.. Its cool being on a general ward though, and not stuck in an Iso room. She is doing well and went home 1 week after being admitted with nothing more than a red swelling and some stitches. At least Harrison seemed to miss this infection tho!

Soo.. when I get all the blood test results I will update I promise, Harrison has shown a slight growth in his lymphocyte count. This count was at 0.8 and is now 1.1, and we are aiming for 4.0 So still a ways to go, but certainly getting there. His next big review on 20th March will review immunology stuff, eyesight and hearing - so a big day for us


This video is of the water baby himself. It was a lovely day and he was desperate to get into the water and have a splash so we let him do it - given he seemed so well at the time and there was no one around.
Another update to come shortly ....

Christmas, New Year and hospital - again!! :)

Well we had a lovey Christmas and New Year, and a quick trip to hospital for a line infection on the 6th to 8th Jan. So far all is good after a few IV doses of antibiotics, and some to give him for the next 7 days orally.
He is almost back to his old self - albeit a bit sleepy still.

He had some bloods done in hospital which showed his neutrophils had dropped slightly below normal ranges, and that his lymphocyte count ans white blood cell counts had dropped a little too. This seems to have normalised again which is positive and shows he was in fact fighting an infection. On a plus side he did not develop a temperature and his immunoglobulins are in normal ranges, despite the infection, so hopefully when we have the bone marrow transplant revew next week, we will see signs of improvement and hopefully get rid of the central line :) I will do my best to convince the Dr's so that Harrison can go swimming, and keep out of the toilet( where he loves to splash and play when I don't watch him carefully enough). Then of course we get the disinfecting of him and all the toilet surrounds, and hope and pray for no infection.

So that is it - very short and sweet. A huge thanks to Mum, Nikki & Bill for looking after the kids in my absence and for my day care mum Jodie who also stepped in and really got us out of a bind too.
next wednesday is BMT review and all the sorting of bloods will be done to test the progress of the 2 bone marrow transplants.

I will then update all the info re that and add a stack of photos and a vieo of Harrison down at Gosford Waterfront New Years Day.

Harrison is speaking very well now too - the latest is him pointing at the television and saying press play - whether or not the DVD is in to press play on, which is funy and cool that he is talking so well already.