Thursday, January 29, 2009

Pictures, updates and life in general


Harrison above in the swing seat on Christmas morning. He just loves sitting and swinging.

Harrison in hospital at Jan with Line infection around the central line site.


















The photo of Harrison with "santa" A blow up santa at the front of our house over Christmas - he kept asking to "See Santa" in his little baby speak - as very cute !

I have attached some pictures and video of the boy at Christmas and hope you all enjoy watching my amazing little man come of age. There was a short hospital stay in Jan for H with a line infection around the central line site - a skin infection of sorts so there are pictures of him then too.

In less then 6 weeks Harrison will be two - a milestone I thought we would not achieve some weeks, and he has proven many people - including myself to be wrong. He is nothing short of fantastic. He is down to 3 monthly visits at Children's hospital and there is talk of starting immunisations - then testing his immune function after the first course to see how his body reacts. I have no idea how the bone marrow stuff all is going, but tis must be ok f the doctors are starting to discuss all this.

I am writing this from hospital with Ella in this time - has a lovely infection in her jaw - and many swollen glands etc, which needed to be surgically drained.. Its cool being on a general ward though, and not stuck in an Iso room. She is doing well and went home 1 week after being admitted with nothing more than a red swelling and some stitches. At least Harrison seemed to miss this infection tho!

Soo.. when I get all the blood test results I will update I promise, Harrison has shown a slight growth in his lymphocyte count. This count was at 0.8 and is now 1.1, and we are aiming for 4.0 So still a ways to go, but certainly getting there. His next big review on 20th March will review immunology stuff, eyesight and hearing - so a big day for us


This video is of the water baby himself. It was a lovely day and he was desperate to get into the water and have a splash so we let him do it - given he seemed so well at the time and there was no one around.
Another update to come shortly ....

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