A quick shout out to Katlyn!
Katlyn is about to undergo a bone marrow transplant. She has made it this far and we know how hard that struggle has been!!! When a donor match is made which we hope is very quickly, we pray for her that it's a perfect Match and it takes quickly and complication free!!!
Our thoughts are with you on this next phase and we know that you will conquer this hurdle as you have all others !
To track her journey here is the link ...Katlyn's blog
Join us in celebrating Harrison's life while he battles Bubble boy disease - aka : ADA-SCID (Adenosine Deaminase Deficiency causing Severe Combined Immune Deficiency) and RP - Retinitis Pigmentosa - degeneration of the eye leading to blindness. Harrison is one of maybe only 2 ADA deficient child registered for PID (Primary Immune Deficiency) in Australia.
Harrison
Harrison at hospital - he wrote his own name!
About Me
- Harrison
- Central Coast, NSW, Australia
- This website has been set up for Harrison. It is maintained by his mum(Tracey). This site is our way of keeping Harrison's journey up to date, providing up to date information about his disease, treatments and his progress. We welcome family and friends feedback. It is our hope this site opens up the very unknown world of SCID and in particular ADA deficiency. Click on the below link to email us direct if you wish :)
Harrison's Updates
- Bank account for donations - Acct name Harrison Hospital Fund BSB 633000 Acct No 154629372
- Immune Function is declining his bone marrow transplant has failed.
- Acheivement - well he got sick but didn't go to hospital :)
- Length = 130+cm - hes growing up now at 8 years old!
- Weight = hovers around 24 kgs. He is slowly losing weight
Blog Archive
Links
- Adenosine Deaminase Deficinecy
- Australian Bone Marrow Donor Registry
- Immune Deficiencies Foundation of Australia
- Jeans for Genes
- Katlyn's Struggle with ada-scid
- Kit's Kindergym blog
- Logan's Blog
- Optus
- Parker's Battle with ADA
- Retina Australia
- Royal Institute for the Deaf and Blind
- SCID Stuff
- Sebastian's Story
- the Children's Hospital at Westmead
- The SCID homepage
- Vision Australia
Thank You
There are a few thank you's we need to add here.
While in hospital Optus have been kind enough to provide a lap-top computer which enabled us to get this site up and running.
To our Family and many, many friends for your constant love and support.
To Jeans for Genes Foundation and CMRI, The Children's Hospital at Westmead, the many doctors, nurses, volunteers, and other dedicated staff who helped Harrison along the way.
And the following foundations who have also provided support: The Steve Waugh Foundation - they have a wonderful program for looking after parents and carers in the hospital, IDF Australia & Central Coast Kids In Need - for the wonderful support in aiding us with the expense of accommodation whilst in hospital.
While in hospital Optus have been kind enough to provide a lap-top computer which enabled us to get this site up and running.
To our Family and many, many friends for your constant love and support.
To Jeans for Genes Foundation and CMRI, The Children's Hospital at Westmead, the many doctors, nurses, volunteers, and other dedicated staff who helped Harrison along the way.
And the following foundations who have also provided support: The Steve Waugh Foundation - they have a wonderful program for looking after parents and carers in the hospital, IDF Australia & Central Coast Kids In Need - for the wonderful support in aiding us with the expense of accommodation whilst in hospital.
Star FM
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