Eyesight update

We have had news recently that the growth in Harrison's eye - known as vasoproliferative tumour- may be a cancer. Dr's took some time to further check and we have had reassuring news that indeed the tumour is not cancerous. It is an aggressive benign tumour so there is still much time to be spent checking and monitoring. Eventually the eye will have to be operated on in some form and at that time the surgery will send his right eye blind too. Naturally, we are keen to delay this as long as Harrison is not in pain.
So the disneyland trip is now officially on - we have been given ok from every doctor to allow this trip to go ahead.
We plan to have a month in the USA seeing the various sites of Disney and the countryside - mostly in a giant rv .
Harrison's grandmother has taken an early retirement to fund this trip but we have had a few amazing people on our side donating and organising donations to cover Harrison's share of our costs. So far that equates to nearly $1900 dollars and we are very thankful . Once the final figure is in we will be naming and thanking our sponsors and donators here online and in person .

Flight centre are may now trying to work magic to get us fantastic flight deals and help with booking everything for our trip- as we literally put on hold doing everything until we had news re the eye growths .
Next step passport applications finalised and off on a big plane trip.
I for one spend a Lot of time thanking the stars for making this growth to be a benign one. I think my little boy has had enough to contend with as it is :)

So two more doses of intragam to go and we say Bon voyage. It's sad and exciting at the same time to do this trip.
I wish we just had 2 more years so Harrison was that much older to really remember everything of the trip and to allow us more time for all the things we want to achieve.

Harrison left eye February 2014 

Small vasoproliferative tumour

Harrison left eye June 2014 

Larger more complex vasoproliferative tumour growth