Its the end of June and despite all the little problems and impending BMT, Harrison has learned to smile. It is lovely to see him just look and act like a normal baby. He is now generally well, and is feeding well.
His complimentary feeds have reduced to only about 20- 40 ml per feed as my milk supply came back very well. I am encouraged by this as I know that he is getting, even in very small doses, some antibodies from me - and hopefully this is helping to keep him well. That and the continued masking and gowning in the room.
There is also the preparation going along at a rate of knotts for BMT. Ella's confirmation came back as all good, the various reviews came back and it is all set for the 12th July 2007. Ella will come into hospital for day surgery, have the bone marrow collected and will go home later that same day.
The bone marrow is then taken to the lab and tested for its cell count, readied for transplant and brought back to the children's hospital for the transplant to take place.
6th July - Harrison has another IVIG to top him up pre transplant. He has also had another MRI done to review the eyes problem 0-checking again the brain and fluids. He also has a series of lumbar punches done to ensure there is not a viral infection in the spinal fluids causing his brain to have problems and therefore the eye movements.
All seems to be ok in this regard, although his brain size is a little smaller than average - which can be attributed to ADA deficiency.
2 comments:
Lil H, you are such a brave soldier! You have, thank God, your mother's tenacity & fighting spirit! Sending you so many positive, happy, healthy, healing vibes from across the other side of the world! I love you! Auntie Beth xx
Congratulations on hanging in there guys! We've just heard you are coming home soon, can't wait to see that smile in person and give your Mum a hug.
Love Lucinda, Shannon and Lily xxx
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