Hospital visit number...

I have actually lost count already as to how many visits to hospital Harrison has had. Wednesday was a check with the immunology team who a happy with the weight and height he is. Even though to me he seems small in comparison to Marlie, Sterling & Ella, Harrison is holding his own.

The formula concentration has been dropped back to normal, he is now eating solids really well - But I tell you it was hard yards getting him to eat them at all.

Dairy is a no go zone for little H, and his eyes and ears, well I'll get to that in a minute.

Once we saw the immunology team, Where Harrison was given the royal treatment - Sam ( Dr Sam Mehr for the uninitiated) is my main Dr contact and he is always up for a cuddle. But then he called Dr Alyson Kakakios ( Alyson) a cuddle nazi - which I thought very funny cause he likes cuddles just as much as Alyson.. But hey she has a nickname now that she'll never live down!

It makes for a fun visit when we see the Immunology team.

Then a nearly 4 hour wait to do the eye check. They gave him some eye drops and we sat and waited in a dark room for 20 minutes once he had them in to get him "dark sensitised". Marlie was with me for the day and she was a little unnerved by being awake and in the dark for so long. The staff gave her this little pen torch with a red cap on it and she was happily shining red light everywhere.

Harrison's eyes did what the team expected with Retinitis - didn't respond all that well to the light impluses. Then they left him for 5 minutes with lights on and repeated all the tests. To me it didn't seem like there was a very big difference in the dark vs light testing.. In fact the lines that they look at seemed pretty flat ( not much up and down range from the horizontal line)

So I guess he has retinitis confirmed from this but we'll know more on the 6th November. ( Another hpspital visit)

So I now have 23rd Oct - Dr Harvey for the check on his abscess. Since he was hospitalised for the central line infection, Harrison's bum seems to have cleared up? Will know that for sure next week too. Then 26th October for Intragam AGAIN!! then 6th November eye Dr appointment to discuss the results and further testing then 9th November for the hearing test under sedation . 4 appointments, in three weeks is pretty good going and all bar one at Westmead. Lucky the car drives down there on autopilot now.

Hopefully we'll still have a car then? Trying to sell it so that we don't have to pay for a lease with the money we currently bleed from a stone! I am now, you see, on unpaid leave so MONEY is tight. Very tight, but then you don't need to be a rocket scientist to work out that we were gonna get tight on one income when we were used to living on two.

Anyway will keep you posted (LOL) as to how things r going with Harrison. The physio was happy with him the other day - so that is a plus.